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Multiple Myeloma Research

Thank you for your interest in our research. Your time and opinions are greatly valued to help our partner better meet the needs of people with multiple myeloma. Before we begin, we would like to take a moment to inform you of our privacy policy.  At Inspire, your privacy and safety are important to us. We believe you should be able to make informed decisions about your information and data. Before proceeding, please review the following information to help you decide if you want to participate. After reviewing the research specifics, you will be asked to provide your consent. After you consent, click Next to proceed to the survey.

About this research:
This research hopes to learn more about the experiences of people with multiple myeloma.

What will happen during the research?
You will be asked to participate in an online survey about your experiences with multiple myeloma. The survey should take less than 10 minutes to complete.

What are the risks to me of participating in this research?
Information you share will be used solely for research purposes. Risks of harm are minimal because access to your data is carefully limited.

What benefits could there be from taking part in the research?
Since this research does not provide treatment, there is no direct benefit to you other than the knowledge that your answers are part of an effort to improve the lives of people with multiple myeloma. Information learned from the research may help other people in the future with understanding or managing their illness.

Will I be paid for this research?
There is no reimbursement for this brief survey. Participants who qualify for and are chosen to participate in the online research community, and who actively engage in the research, will receive a $50 Amazon gift card for every month they participate, as a thank you, 4-6 weeks after each touchpoint.

How will my privacy be protected?
1) If you decide to participate in this research, the research team will share your individual answers with the sponsor to identify qualifying respondents for the online research community. All data will be deidentified and anonymized; your name (including Inspire username) and contact information will not be shared or tied to your responses in any way.

2) No personal information such as your name or address will be reported for the purposes of this research. As such, you will not be identified in any way in any reports about this research or in any other scientific publication or presentation.

3) All of your individual responses will be kept strictly confidential and will only be reported in deidentified raw data with all other responses for analysis.

4) If you decide to participate in this research, the research team will only use your responses as described above.

Any information you provide will be handled respectfully in ways that protect your privacy and identity.

As always, you can read Inspire’s full privacy policy here. If you have further questions about the policy or how it pertains to this research, please feel free to contact the Inspire Director of Research through this email: sara.ray@Inspire.com